The human genome project : how private sector developments affect the government program : hearing before the Subcommittee on Energy and Environment of the Committee on Science, U.S. House of Representatives, One Hundred Fifth Congress, second session, June 17, 1998.

  • United States. Congress. House. Committee on Science. Subcommittee on Energy and Environment
Date:
1998
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Licence: Public Domain Mark

Credit: The human genome project : how private sector developments affect the government program : hearing before the Subcommittee on Energy and Environment of the Committee on Science, U.S. House of Representatives, One Hundred Fifth Congress, second session, June 17, 1998. Source: Wellcome Collection.

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    Recapturing Private Investment 0c rce-e costes -deeseassnessesencmsencdsss7senccensaseniyers Tension Between Free Market and Information Dissemination .................. Concerns About Public Access to Information ..............ccsssseeeeceececeseeeeeeeeeetees Consequences of Intellectual Property/Patient/Privacy Rights ..............0006 Consequences of Private-Sector Venture for Federal Human Genome Project tos ee sis lective sess) eed tae eae ae ee NE oe Por Lech dads souaassutovesdyoeg ertapeewens Efficiency of Federal Human Genome Project. ............cccccccccececesececeeeeseseeenenes 81 83 84 84 of the Subcommittee on Energy and Environment Dr. Aristides A. Patrinos, Associate Director of Energy Research for Biological and Environmental Research, U.S. Department of En- ergy: Republican Member Questions: Scientific Justification for Completing Government-Funded Sequencing of Fntire Fuman, Genome ....seuscennns.- Mertheceactecate tien ta ie eet MO en. «aes Efficiencies of DOE’s Joint Genome Initiative vs. Three Different DOE Laboratorygroovams ir a ies-0 Bier ace tie eee er aie He Bite de ‘ Democratic Member Questions: Difference Between the DOE-NIH and “Shotgun” Human DNA Se- quencingeA PPro aches iye.u+. ss anvinsncnsdenan dice tacte rie Be ade RNs A a eA Role of DOE and NIH in Collaboration with Private-Sector Venture ...... Concerns of International Collaborators About Intellectual Property Rights‘and Patenting Ha, AREA ates ares ee eee es Dr. Francis S. Collins, Director, National Human Genome Research Institute, National Institutes of Health, U.S. Department of Health and Human Services: Republican Member Question: Scientific Justification for Completing Covel ment: Funded Sequencing of Entire Human Genome: <.....51..2.<s-s-s2h Wee - suds dee ead. » erase Democratic Member Questions: Difference Between the DOE-NIH and “Shotgun” Human DNA Se- quencing Approaches yr eee ee eee ee Role of DOE and NIH in Collaboration with Private-Sector \ vente eos Concerns of International Collaborators About Intellectual Property Rights-and,Patenting- «2.0%. s.scan termite. cere eter ttre ee ee nome Dr. J. Craig Venter, President and Director, The Institute for Genomic Research: Republican Member Questions: Will the Private Initiative Duplicate the Federal Human Genome PLO] CCE 2a i serrasinaietey esses rat isAveecns iecaebecosett ne Mpaaareaaese Reso ant eee ae ee Concern About Release of Data to the Public ............ccccccccccccccccccccccececeseeeee age for Restructuring the Federal Human fonome roject FOOSE HH EE EE HEHEHE HHHE HOO SE ODES ES ESEEESESO EE EE HEE OE EHO THEE DEH E EO OHEO ESOS OO ES EES ED SHEETS ESHHE EEE OD SESE EO OE OS THO HEH HEHEHE HOHE EEE DE SEH EEE EET EHEEEH EEE OE ESEHE SHEE EHO EEE DEE HHOE EES E HEED OEE EEEH HOE ES EEE EE ESSE EEES Democratic Member Questions: Availability of Genomic Information to the Scientific Community ........... ee of Release of and Compensation for Human DNA Sequence DAR aera ses dinedec ceed eccecacovéderdpss UTE TOL RO, Ue ee Plans to Patent eenomic SEQUENCES * retin cscqteteacrsal nec etre reco eRe Uniqueness of Expressed Sequence Tags .......cc.ccccsssscsccscssssssscrecessscseeseeseees Role of DOE and NIH in Collaboration with Private- Sector Venture ...... Restrictions on Researchers’ Ability to Obtain Human DNA Sequence Information SOOO CC OOH O ee DEER OEEHOE OOOO EOE OEE OES OSLER HOSE O EOE HOT HOOO OOH OOOO EHO O OEE OOS OEE CE EOS OOCS 87 88 89 89 90 92 93 94 94 96 se 98 98 99 99 100 100 101