Concept
Rare Diseases
Catalogue
- Books
The voice of 12,000 patients : experiences and expectations of rare disease patients on diagnosis and care in Europe : a report based on the EurordisCare3 surveys.
Date: [2009]- Books
Experiences of rare diseases : an insight from patients and families / by Lauren Limb, Stephen Nutt and Alev Sen.
Limb, Lauren.Date: 2010- Books
Rare diseases and orphan drugs : keys to understanding and treating the common diseases / Jules J. Berman, Ph.D., M.D.
Berman, Jules J.Date: [2014]- Books
Dystrophic Epidermolysis Bullosa Research Association D.E.B.R.A. / Dystrophic Epidermolysis Bullosa Research Association.
Dystrophic Epidermolysis Bullosa Research AssociationDate: [1992]- Books
Orphan : the quest to save children with rare genetic disorders / Philip R. Reilly, MD, JD.
Reilly, Philip, 1947-Date: [2015]